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Food and Eating Issues - Childhood Disabilities
It is only natural that mothers of babies and young children worry that their son or daughter is not "nursing well" or taking in enough "healthy food" as toddlers. There are a great many opinions even in a single family on topics like whether a baby should nurse or be fed with a bottle; how much and what kind of foods children should eat, and whether 'picky eaters' are just spoiled or nervous. Even among babies and toddlers diagnosed with conditions like Down syndrome or autism, family comments and peer pressure can cause great stress for moms and a very complicated relationship to food for children.
The feeding and eating challenges of babies, toddlers and older children can includes having a baby with a 'weak suck' or a toddler being 'picky eater' as well as eating or food aversions due to sensory integration disorders or physical issues like pediatric GERD, prematurity or other issues that require tube-feeding. Organizations like La Leche League offer advice and support from professionals and moms whose children have temporary or long term special needs for support and accommodations.
Some children with apraxia or Down syndrome who have motor planning problems or sensory processing disorder may have great difficulty with food textures or the physical requirements of chewing and swallowing. Even with help from professionals, parents may feel overwhelmed when their child reaches a plateau in feeding therapy or accepting healthier food options.
Nothing is as important as a mother's relationship with a child. Showing our deep affection and respect for a child can be compromised when either real or artificial goals gain more importance than our enjoyment of the time we spend with our children at the table or nursing. A great deal of stress can be introduced when relatives and friends give advice or we compare our children with others, and especially when experts compare our children with others who have the same diagnosis. Every child is a unique individual and food issues are among the primary ways they can communicate their rights to choice and control. This is only heightened by sensory, physical or developmental issues beyond their control.
Speech therapists, PTs and OTs, pediatricians and neurologists are among the professionals who may be able to advise and support parents when babies and young children have food or eating issues. Not all professionals are aware of contributing factors or probable additional conditions that affect a child with Down syndrome or other developmental disability as they grow up. Being in contact with advocacy and support organizations, reading books or articles by professionals with experience, and making notes about your own observations of a child with food or eating challenges can make all the difference for your son or daughter.
Browse at your public library, local library or online retailer for books like: Diagnosis and Treatment of Feeding Disorders in Infants, Toddlers, and Young Children; Improving Speech and Eating Skills in Children with Autism Spectrum Disorders - An Oral Motor Program for Home and School;Nutrition in Children with Down Syndrome: A Guide to Promoting Healthy Lifestyles.
Introducing Food Textures - Joan Medlen RD LD
From Milk to Table Foods: A Parent's Guide to Introducing Food Textures
Breastfeeding Your Baby with Down Syndrome
Is it possible to breastfeed my baby who was born with Down Syndrome?
Thank you, La Leche League
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