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Down Syndrome and Spinal Concerns
Children with Down syndrome have been evaluated for the cervical spine disorder atlantoaxial subluxation for a quarter century. The 1996 evidence based guidelines for doctors are now expanded to refer to cranial-vertibral instability and spinal instabilities including occipito-atlanto deterioration.
IEP Meeting Cancellation Frustration
Parents report frustration over poor attendance and late cancelations of school meetings by teachers, support staff or administrators after families members take time off work and have spent weeks gathering information to present for adequate support and approrpriate placement for their child.
Fly Fishing for Kids and Teens with Down Syndrome
DownStream can ignite a lifelong passion for the sport and art of fly fishing in children, teens and young adults with Down syndrome by providing an amazing daylong event for them and their families.
Epilepsy, Seizures and Vagus Nerve Stimulation
VNS (Vagal Nerve Stimulation) therapy to reduce the frequency and intensity of seizures for children and adults was developed in the mid-1990s. Today it is used when children who lose consciousness during complex partial seizures or generalized seizures not being controlled by medication or surgery.
Medical ID Bracelets for Children and Teens
Identification bracelets, tags and other jewelry are especially important for children and teens who have conditions like diabetes, autism, Down syndrome, asthma or seizures, speech impairments and/or developmental disabilities. There are varieties that suit different fashion needs and special needs
Teddy Bear Hospital Events for Children
Communities may offer Teddy Bear Hospital events for kindergarteners, where nursing and medical students have been trained to communicate with and soothe children's fears about hospitalization or medical procedures. Teddy bear picnics may include first aid clinics during children's hospital tours.
Doorstops for Kids and Teens in Wheelchairs
Local businesses, entertainment venues and school event locations may not think to provide low-cost, thoughtful supports for children, teens and adults with disabilities - including doorstops for those in wheelchairs.
Families of children who are diagnosed on the autism spectrum want others to know that each son or daughter with autism is as unique and different from one another as their mainstream peers. They also stress awareness of best practices that benefit most children and teens who have autism.
Response to Intervention - RTI and IDEA
Response to Intervention, known as RTI, is included in IDEA 2004. RTI allows earlier access to accommodations and support for children who struggle in school, including intense intervention, and frequent progress reporting to modify instruction or goals, for more effective teaching of all children.
Patient Advocacy for Children in Hospitals
Families of children with special needs may be more aware of the specific risks during hospitalization that a son or daughter may experience than the most common dangers every child faces due to hospital mistakes, miscommunication or uninformed decisions. Companions and checklists reduce the risks.
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